Another month and a half has gone by since I wrote last. A lot has happened in that time and there has been some big changes. Both of the kids are back in school, praise God! I was so relieved when I found out that the kids could go back to school as it was a very long and hard summer for Landon. He really relies on a routine and I was already worried about how summer would go before the strike came into play. Needless to say the extra month of summer break was hard on everyone in this household. Thankfully his autism program continued through the summer so at least he had 2 hours of that everyday, but I knew that that was also coming to an end. The autism program is an early intervention program so each child graduates from the program when they turn 6. As Landon's 6th birthday was quickly approaching and there was no end in sight to the teachers strike, I was concerned he would soon be without anything to do during the day. Thankfully the strike ended and Landon's first full day of school was on his 6th birthday.

The day after his birthday we had a meeting with the behaviour consultant at his program to discuss his time there coming to an end. Landon had been going there since he was 3 1/2 and I was starting to worry about how this next chapter would go, as his autism funding would drastically drop and he wouldn't be getting even close to the same amount of therapy as he had been getting for the last 2 1/2 years. So this meeting was to help give us an idea of what to do next. I knew I had a lot of work to do but found out that I have more to think about than I even thought.
The behaviour consultant confirmed some concerns of mine about Landon. I always thought that Landon was more difficult than other children on the spectrum and often wondered if there was another issue that needed to be addressed. At the meeting we discussed that they believe he may have something else going on and that we should have a mental health assessment done on him. She believes that he may have an Obsessive Compulsive Personality Disorder. At least that's what I think she called it, it's all kind of a blur to be honest. OCPD is not the same as OCD. I don't know too much about it yet but as she was talking to us about it, it all made sense. Landon often obsesses over a specific task or thing in our house and there is
nothing we can do to get him to stop doing it. For example, this summer he really wanted to climb on the stove, open the microwave, knock on the inside and then shut the door all while saying the same couple phrases. Over and over and over again. It is not something we wanted him to do as he could easily burn himself if I was using the stove plus he was breaking the stove door as he was standing on it and we knew it was just a matter of time before he pulled the microwave door right off. I don't think I'm exaggerating when I say he went over to the microwave close to 100 times a day. He was obsessed. That is just one example of the many things he obsesses over. He's not able to move on to a new task unless we say the exact phrase in the exact tone that he is expecting. If we force him to move on, he breaks down. He can't handle it and doesn't know how to regulate his emotions.
So anyway the gist is we have to get him assessed...again. As I was sitting there listening to her tell us about this and use phrases like "Landon's the kind of child that should be getting 40 hours of therapy a week", I tried my best to look composed as in my head all I could think was that I can't believe we are having another discussion about a third diagnosis. We have had so many meetings with doctors and professionals since landon was a newborn and all of it kind of blurs together. Each meeting they give you the bad news and then pile on a bunch of information. It's hard to walk out of meeting remembering much of what they said. I have three vivid memories of the 'big' meetings where we found out he was blind, that he was autistic and now that he may have a mental disorder.
"I'm not convinced that he can see", is how the opthamologist at the children's hospital put it.
At Sunny Hill I remember feeling overwhelmed when the assessing dr said, "You're going to have to find a therapy team that is experienced in autism therapy as well as visual impairment."
And this last meeting, "I'm going to refer you for a mental health assessment".
I felt overwhelmed and heartbroken for my son as my deep down fear, that he might be too much for me to handle when he's a full grown boy, is now a legitimate fear. He is so strong and can be quite violent now and he's only 6. What am I going to do when he's 16 and towering over me? Will he be dangerous at school and not be allowed to go? Will I have to make the painful decision of putting him in a home after he hurts me or his sister badly? All of these questions flood through my mind. It's hard not to go there. To let your mind think of the worst case scenario. I trust God though and know that whatever it is, He will help us through it. He's already gotten us this far! So now what I need to focus on is getting him assessed and finding a behaviour consultant that is specialized in mental health and visual impairment, and that is also willing to travel to our small town. That's a tall order.

A couple of days after the meeting, I was in a dollar store with Jason while the kids were at school. It was the day before Landon's birthday party and I walked past the party supplies and realized I had nothing for the party. If you know me well, you know I love to plan a party and I love to hand make decorations and I usually go over board. I just really enjoy it! This year though I was completely consumed in what we had just recently found out at the meeting and had forgotten to do things for his party. The last few years we have rented out a gym at the town rec center because Landon loves to play in a big gym. It's usually just family that comes: few cousins and mostly adults, because Landon has no friends. This year though, most of our family wasn't coming to his party so there was only 4 other people coming. I got hit so hard with the reality of everything as I stood there staring at the party supplies. I think I stood there paralyzed for 5 minutes before I started to pick stuff out for him. I picked out things for the 3 goody bags I would need. All girl things for his sister and two cousins which was another reminder that my son had no friends. I'm sure there are some boys I could have invited but Landon wouldn't have played with them anyway. I got everything I needed and when I got into the car with Jason I burst into tears. He looked at me confused because what on earth could have just happened in there? My heart broke in the party section of that dollar store. My sweet, blind, autistic, obsessive compulsive son has no friends and barely anyone is coming to his birthday party. My poor boy. The funny thing is Landon didn't care. I don't think he understands what a birthday is but he likes playing in that gym and he likes hearing people sing happy birthday. He enjoyed his birthday party and it was a nice surprise when his EA from school showed up with a perfect gift for him. I wish I could have enjoyed it more. That I could have just seen the joy on his face and not seen what was missing. It's hard not to want normal things for him though. A party that is full of kids, where I can watch him run around shooting nerf guns with his friends. That's just not the way it is for him. So for now I'll just watch him giggle when his daddy pulls him on a mat around the gym, and I'll take pictures while he's clapping at the happy birthday song and I'll smile while he lays on the floor with a singing birthday card over his face.

So anyway, that's where we're at right now. I would say Landon is doing really well with all of the big changes in the last month. He's accepted the new routine of a full day at school and not going to the program anymore. He is slowly adjusting to his new classroom and teachers. Spending a little more time in his new class each day. He is starting to learn Braille and from what I've heard he is doing really well with it. I am super proud of him and even though I may feel sad with the circumstances of his life, he brings me so much joy with one smile or infectious belly laugh.
I still believe he's a gift and I know God is going to use him to do big things. He already is.